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    Date: 2020-10-09 18:02:22.899452

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    Date: 2020-10-12 08:11:54.673525

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    Date: 2020-10-21 12:54:21.481601

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Number of X-linked Dystonia Parkinsonism and Parkinson's disease patients in the Philippines

Requested from DOH by A. Bitanga at 06:02 PM on Oct 09, 2020.
Purpose: Research for undergraduate thesis
Date of Coverage: 01/01/2015 - 10/09/2020
Tracking no: #DOH-292673965038

Bitanga 06:02 PM, Oct 09, 2020 

Good day! I would like to request for information regarding:

1. The number of X-linked Dystonia Parkinsonism patients and Parkinson's disease patients in the Philippines from the year 2015-2020.

2. The city that has the most cases of XDP and Parkinson's disease.

Receiving Officer 08:11 AM, Oct 12, 2020 

October 12, 2020

Dear Allysa Joyce,

Thank you for your request dated Oct 09, 2020 under Executive Order No. 2 (s. 2016) on Freedom of Information in the Executive Branch, for Number of X-linked Dystonia Parkinsonism and Parkinson's disease patients in the Philippines.

We received your request on Oct 09, 2020 and will respond on or before Oct 30, 2020 06:02:22 PM, in accordance with the Executive Order's implementing rules and regulations.

Should you have any questions regarding your request, kindly contact me using the reply function on the eFOI portal at https://foi.gov.ph/requests/aglzfmVmb2ktcGhyHQsSB0NvbnRlbnQiEERPSC0yOTI2NzM5NjUwMzgM, for request with ticket number #DOH-292673965038.

Thank you.

Respectfully,

FOI Receiving Officer

09:42 AM, Oct 13, 2020 

Hi Allysa Joyce Bitanga

Please be informed that your request has been endorsed to the Disease Prevention and Control Bureau for action. Kindly await for their response, thank you


October 21, 2020

Dear Allysa Joyce Bitanga,

Greetings!

Thank you for your request dated Oct 09, 2020 06:02:22 PM under Executive Order No. 2 (s. 2016) on Freedom of Information in the Executive Branch.

Your request

You asked for Number of X-linked Dystonia Parkinsonism and Parkinson's disease patients in the Philippines.

Response to your request

While our aim is to provide information whenever possible, in this instance this Office does not have [some of]* the information you have requested. Thank you for the interest in mental health and for sending in your request through the  Electronic Freedom of Information (eFOI). Please refer to the Mental Health Program (https://www.doh.gov.ph/national-mental-health-program) for an overview of the services we provide.

With regard to the query on the number of X-linked Dystonia Parkinsonism patients and Parkinson's disease patients in the Philippines from the year 2015-2020, we regret to inform you that the XDP registry is not yet part of the current information system. However, please refer to this study (attached), for information. You may also contact Philippine Children's Medical Center for the XDP registry.


For further assistance you may review the FAQ section of the eFOI site: https://foi.gov.ph/help.

Your right to request a review

If you are unhappy with this response to your FOI request, you may ask us to carry out an internal review of the response by writing to Undersecretary Lilibeth C. David, Chair of Data Governance Oversight Committee/ DOH Central Appeals and Review Committee, at foi@doh.gov.ph. Your review request should explain why you are dissatisfied with this response, and should be made within 15 calendar days from the date when you received this letter. We will complete the review and tell you the result within 30 calendar days from the date when we receive your review request.

If you are not satisfied with the result of the review, you then have the right to appeal to the Office of the President under Administrative Order No. 22 (s. 2011).

Thank you.

Respectfully,
FOI Officer

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