University of the Philippines Cebu

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    Date: 2023-03-27 12:46:07.117484

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    Date: 2023-03-27 14:33:07.312095

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STATISTICS: Number of having a Rare Disease called Mucopolysaccharidoses in the Philippines

Requested from UPC by E. Gonesto at 12:46 PM on Mar 27, 2023.
Purpose: Research and Development
Date of Coverage: 03/27/2023 - 03/27/2023
Tracking no: #UPC-960738544672

Gonesto 12:46 PM, Mar 27, 2023 

Greetings!
I am Ela Jeen Gonesto, a BS Biology student of UP Cebu. I would like to request of updated statistics records (2023) about the Number of having a Rare Disease called ''Mucopolysaccharidoses'' in the Philippines.

Your help is highly appreciated!


March 27, 2023

Dear Ela Jeen,

Greetings!

Thank you for your request dated Mar 27, 2023 under Executive Order No. 2 (s. 2016) on Freedom of Information in the Executive Branch.

Your request

You asked for STATISTICS: Number of having a Rare Disease called Mucopolysaccharidoses in the Philippines.

Response to your request

While our aim is to provide information whenever possible, in this instance this Office does not collect  the information you have requested. However, you may wish to contact DOH  at  https://doh.gov.ph/, or resubmit your request addressed to the correct agency on the eFOI portal  https://www.foi.gov.ph/dashboard/ro or try https://rarediseases.org/rare-diseases/mucopolysaccharidoses/.

For further assistance you may review the FAQ section of the eFOI site: https://foipmo01272020144559-dot-efoi-ph.appspot.com/help.

Your right to request a review

If you are unhappy with this response to your FOI request, you may ask us to carry out an internal review of the response by writing to Chancellor Leo Malagar at oc.upcebu@up.edu.ph. Your review request should explain why you are dissatisfied with this response, and should be made within 15 calendar days from the date when you received this letter. We will complete the review and tell you the result within 30 calendar days from the date when we receive your review request.

If you are not satisfied with the result of the review, you then have the right to appeal to the Office of the President under Administrative Order No. 22 (s. 2011).

Thank you.

Respectfully,
FOI Receiving Officer
FOI Officer

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